Genomic Privacy (Dagstuhl Seminar 13412)

Abstract

Recent advances in genomics prompt a formidable privacy challenge: As the price of a complete genome profile has plummeted to as low as 99 USD for genome-wide genotyping, wide-spread usage of genomic information is about to become reality. Substantial progress is expected in the near future in terms of improved diagnoses and better preventive medicine.

The impact of the increased availability of genomic information on privacy, however, is unprecedented, for obvious reasons: First, genetic conditions and the predisposition to specific diseases (such as Alzheimer's) can be revealed. Second, a person's genomic information leaks substantial information about his relatives. Third, complex privacy issues can arise if DNA analysis is used for criminal investigations, epidemiological research, and personalized medicine purposes.

This report documents the program and the outcomes of the Dagstuhl Seminar 13412 "Genomic Privacy". The goal of the seminar was to bring together leading researchers, from different areas of academia and industry. The seminar welcomed participants from computer science, bioinformatics, genetics, ethics and medical fields. Through a series of presentations, discussions, and working groups, the seminar attempted to provide a coherent picture of the field, which transcends the borders of disciplines. The participants discussed many aspects of genomic privacy and jointly identified the main requirements and the possible technical solutions for protecting genomic data.